Today, May 5th, 2021 marks 4 years since I sat in the Neurologist’s office and heard those words, “Well, I think I can say that you have Parkinson’s Disease.”
Looking back, I have never felt as terrible as I did prior to that day!
Before my diagnosis, I was having unbearable shoulder pain, crazy rigidity/stiffness, urinary incontinence (which meant carefully timed planning for proximity to washrooms), a tremor that I was unsuccessfully trying to control and conceal, my handwriting was illegible, my words were soft, slurred, and often unretrievable, I choked regularly on food/liquid, and I was working under extremely stressful conditions as a VP at a high-needs school.
But although this disease continues to progress while presenting new and unwelcome challenges, I actually feel better now than I did then.
Medication has eased the tremor, improved handwriting, and reduced urinary urgency.
Physiotherapy and Osteopathy treatments help with my shoulder and other PD-related pain.
A Naturopath has prescribed supplements to reduce inflammation.
Speech Therapy and a Swallowing Assessment have offered strategies that help reduce choking and improve vocal volume.
Daily exercise and dietary changes improve everything!
And leaving my job, although a difficult event to accept, removed the stress that was making all of my symptoms worse and provided me with much-needed time to practice self-care.
So finally receiving a PD diagnosis, that explained the reason for all of these symptoms, provided a weird kind of relief and an opportunity to focus on a path forward.
Don’t get me wrong, Parkinson’s sucks (for lack of a better term). There are some really tough days (and nights) and I know that things will continue to become more difficult over time – PD is famous for this – but for today I will mark the anniversary by acknowledging all that I have learned about my brain and the efforts that I have undertaken to slow this train down.
“Diagnosis is not the end, but the beginning of practice” Martin H. Fischer
(The red and white tulip is the symbol of Parkinson’t Disease)
Photo Credit: P. Dunlap (thanks Pete!)
